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    Validity, reliability and responsiveness of digital visual analogue scales for chronic spontaneous urticaria monitoring: A CRUSE ® mobile health study - Archive ouverte HAL
    Article Dans Une Revue Allergy Année : 2024

    Validity, reliability and responsiveness of digital visual analogue scales for chronic spontaneous urticaria monitoring: A CRUSE ® mobile health study

    Bernardo Sousa-Pinto
    Aiste Ramanauskaite
    Sophia Neisinger
    Ellen Witte-Händel
    Ana Gimenez-Arnau
    Carole Guillet
    Claudio Alberto S. Parisi
    Constance Katelaris
    Daria Fomina
    Désirée Larenas-Linnemann
    Elizabeth García
    Emek Kocatürk
    Frank Siebenhaar
    Hermenio Lima
    Igor Kaidashev
    Iman Nasr
    Isabel Ogueta Canales
    Ivan Cherrez Ojeda
    Jacques Hébert
    • Fonction : Auteur
    Jean Bousquet
    Jonathan Bernstein
    Jonny Peter
    Jorge Sanchez
    Jose Ignacio Larco Sousa
    Kanokvalai Kulthanan
    Karsten Weller
    Kiran Godse
    Krzysztof Rutkowski
    Lasma Lapina
    Laurence Bouillet
    Translational Research in Autoimmunity and Inflammation Group
    Leo Lianyi Han
    Luis Felipe Ensina
    Margarida Gonçalo
    Markus Magerl
    Martijn van Doorn
    Martin Metz
    Maryam Khoshkhui
    Michihiro Hide
    Murat Türk
    Nataļja Kurjāne
    Niall Conlon
    Pascale Salameh
    Pavel Kolkhir
    Riccardo Asero
    Roman Stepanenko
    Sabine Altrichter
    Sara Gil-Mata
    Simon Francis Thomsen
    Torsten Zuberbier
    Vladyslav Tsaryk
    Young‐min Ye
    Zenon Brzoza
    Zuotao Zhao
    Marcus Maurer

    Résumé

    Abstract Background CRUSE® is an app that allows patients with chronic spontaneous urticaria (CSU) to monitor their daily disease activity through the use of visual analogue scales (VASs). We aimed to determine the concurrent validity, reliability, responsiveness and minimal important difference (MID) of CRUSE® VASs. Method s We evaluated the properties of three daily VASs: VAS for how much patients were affected by their CSU (‘VAS urticaria’), VAS for the impact of urticaria on work/school productivity (‘VAS productivity’) and the VAS of EQ‐5D. Concurrent validity was assessed by measuring the association between each VAS and the Urticaria Activity Score (UAS). Intra‐rater reliability was determined based on the data of users providing multiple daily questionnaires within the same day. Test–retest reliability and responsiveness (ability to change), respectively, were tested in clinically stable and clinically unstable users. MIDs were determined using distribution‐based methods. Results We included 5938 patients (67,380 days). Concurrent validity was high, with VAS urticaria being more strongly associated with the UAS score than the remaining VASs. Intra‐rater reliability was also high, with intraclass correlation coefficients (ICC) being above 0.950 for all VASs. Moderate‐high test–retest reliability and responsiveness were observed, with reliability ICC being highest for VAS EQ‐5D and responsiveness being highest for VAS urticaria. The MID for VAS urticaria was 17 (out of 100) units, compared to 15 units for VAS productivity and 11 units for VAS EQ‐5D. Conclusion Daily VASs for CSU available in the CRUSE® app display high concurrent validity and intra‐rater reliability and moderate‐high test–retest reliability and responsiveness.

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    https://hal.univ-grenoble-alpes.fr/hal-05000710

    Soumis le : vendredi 21 mars 2025-14:08:04

    Dernière modification le : samedi 22 mars 2025-03:26:27

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    Dates et versions

    hal-05000710 , version 1 (21-03-2025)

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    Citer

    Bernardo Sousa-Pinto, Aiste Ramanauskaite, Sophia Neisinger, Ellen Witte-Händel, Ana Gimenez-Arnau, et al.. Validity, reliability and responsiveness of digital visual analogue scales for chronic spontaneous urticaria monitoring: A CRUSE ® mobile health study. Allergy, 2024, 80 (3), pp.750-761. ⟨10.1111/all.16371⟩. ⟨hal-05000710⟩

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