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Article Dans Une Revue Joint Bone Spine Année : 2024

Standardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative

Pascal Claudepierre
Hubert Marotte
Sophie Pouplin
  • Fonction : Auteur
Eric Senbel
  • Fonction : Auteur

Résumé

Introduction National and international scientific societies advocate for a regular, systematic, and standardized global evaluation of axial spondyloarthritis (axSpA) patients. However, there are no recommendations specifying the content of this global evaluation. This initiative aimed to propose a standardized reporting framework, using evidence-based and consensus approaches, to collect data on all domains of axSpA. Methods A literature review and consensus process involved a steering committee and an expert panel of 37 rheumatologists and health professionals. The first steering committee took place in March 2022 and identified the main domains for inclusion in the standardized report. A hierarchical literature review was conducted to identify items within these domains and tools for assessment. The items and tools for assessment were discussed and consensus was reached through a vote session during an expert meeting that took place in March 2023. Results The steering committee identified four main domains to include in the standardized reporting framework: disease assessment, comorbidities, lifestyle, and quality of life. Items and tools for assessment were adopted after the expert meeting. Additionally, recommendations regarding digital tools (websites, apps, social media) were provided. Conclusion This initiative led to a consensus, based on evidence and expertise, on a reporting framework for use during periodic systematic global evaluations of axSpa in daily practice.
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Dates et versions

hal-04564488 , version 1 (30-04-2024)

Identifiants

Citer

Adeline Ruyssen-Witrand, Damien Caillet-Portillo, Aurélie Najm, Olivier Fogel, Athan Baillet, et al.. Standardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative. Joint Bone Spine, 2024, 91 (5), pp.105733. ⟨10.1016/j.jbspin.2024.105733⟩. ⟨hal-04564488⟩
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